My name is Ilayda Mae, I was born
in August 2000, 3 weeks early (apparently typical for a child with Down
Syndrome). When I was thirteen weeks old I had a hole in my heart repaired,
then I spent my first Christmas in hospital because I had pneumonia, bronchilitis
and a collapsed lung. I had to go into hospital again the following February
and wasn’t really well until I was about nine months old. I am very well now
and am rapidly learning lots of things. However I do like to trick my mum and
dad by doing something a few times and then not doing it again for a few weeks,
especially if they have told everyone I can do it!
I can move around wherever I want
by either walking with the furniture or shuffling on my bottom in a very unique
fashion! I can feed myself with my hands but am
very fussy about what I eat and
often choose not to!!
I spend hours playing with my
beanie animals and kids, and love to look at myself in a mirror, or the cooker,
or a window, stainless steel bin, in fact anything. I also absolutely adore
books, my favourites at the moment are The Gruffalo, Over in the
Grasslands and It’s the Bear. I have a new baby brother who I kiss
and cuddle, then I try to remove his eyes from their sockets or eat his toes!
When I was born lots of people told
my mum and dad that I would be a very loving child and probably would be
musical, and I am. But I am also a cross, miserable, cheeky child, a
frightened, temperamental child, a shy retreating child who shouts for
attention; in fact I have as many facets to my personality as those
children whom no-one feels the need to predict their temperament to reassure
their parents!!